Sunday, February 24, 2008

It is just the flu...why do I get so scared!

Well, H woke up this morning happy at 6:30 am. We watched an early movie and I took William to his basketball game. I called at 9:30 to let Boomer know we were on our way home. He said he put H down for a nap, because he was laying on the floor. I got home around 9:45 and checked on H. My poor baby. He was laying in his bed next the red throw up. Red all over his white bumper pad. Oh well, at least it smelled like strawberries. He has been sleeping all day. I had my EMT/Fire Fighter neighbor come and check his breathing. I have been starring at his feet all day, because his toe nails appeared blue to me. I think I am paranoid. He just got up about half an hour ago and had water and Tylenol. He went back to sleep. But before I put him down I checked his feet. They are freezing. How can he have over 102 fever and have ice cold feet? He is wearing socks! This is when I don't like the experience we have gone through with him. H can't get the common flu without me fearing that his repair is failing. I don't like this feeling. I hope H has a better day tomorrow.

We did get his annual development evaluation back. He is currently 27 months old. He weighs 231bs and 10 ozs. He scored at 21 months for gross motor, 18 months for fine motor, 19 months for adaptive (feeding and dressing), 16 months for social, and 13 months for speech. We are thrilled with these scores. A year ago he wasn't even scoring 12 months in any of the areas, so this is a huge accomplishment for him. He has worked extremely hard for this, as have all of us. I will take some credit for his progress too.

Wednesday, February 13, 2008

Ears, Ears, Ears!!!

Harrison is going to see the ENT tomorrow. While he was being casted for his new braces today I noticed he had some fluid plugs blocking his ears. Sure enough, there is fluid draining from his ears. Poor kid...will he ever get relief?

Monday, February 11, 2008

Update on William

These are some great neighbors from St. Michael, MN...when we lived there. This is the pond in our backyard. We miss it there!
There is William in the silver jacket. This was his first time on skates. Boy, do we miss our little ice pond. We sure don't have that in Texas!
Cameron, Jaeger and William after ice skating!
Another great picture of the boys.
William did a great job out on the ice his first time. He loved it.



William is almost finished with basketball. He has a few more games. He just signed up for baseball and has a little tryout on Wednesday night. He is excited to learn how to play baseball. He is also eager for summer. He keeps thinking about our annual trip to the beach. I hope he can focus on his grades for a few more months. He is doing great and growing like a weed. There is nothing wrong with his appetite.

Update

Harrison is not eating much right now. We are not really sure why and we are not as worried as last week. There is really only so much I can do to make him eat. What he is eating he is also keeping the food in his mouth...gross! The dietitian came last week and weighed H, he weighed 22lbs 11ozs. In December, she weighed him and he weighed 23 lbs. On January 16th he weighed 24lbs. So, he lost a little.

As for his ears, we are to continue drops every 3 days. This is not a fun task. I have to pin him down and listen to him scream bloody murder. I feel so bad for doing it to him. This is probably the hardest thing in 2 years. He took 9 medications 24 different times a day for 6 months, 5 medications for the other 6 months, but all of that was through the feeding tube. When he was down to 3 medications twice a day we had the tube removed. He takes all of this by mouth with ZERO fight! Ear drops are another story.

Hopefully, this treatment will work. If not, back to the ENT and Infectious Disease Doctor.

Wednesday we go to Hanger to be fitted with new feet braces. They want to go taller. He is losing balance quite a bit and falling, so the PT thinks that he needs AFO's instead of SMO's. AFO stands for Ankle Foot Orthotics.

The next specialist we see is Genetics, in March. Maybe she can shed some light on eating, walking, talking and ears.

We think H has 2 words: No and Mine...they don't sound like the words, but we think he says them. He did the sign for help today and I was so excited. It is not exactly, but he knows what he is doing. He looks at a picture of a ball and does the ball sign. And of course, MORE has become his universal sign for anything and everything.

H got his hair cut and I will try and post a picture soon.

Just Photos

He is due anytime!!! Just kidding. This is what chronic constipation does to your belly. He does look cool with his shades on though.




I just love this photo. I walked in and saw him like this. The yellow thing is one of those hands you wear at football games. He has it between his legs. Thankfully it was facing this direction. I imagine it would have been hilarious if it was facing the other direction.

Sunday, February 3, 2008

The Never Ending Ear Drops!

We just don't know what to do! Harrison didn't seem himself yesterday and we thought he was just tired. No!!! He woke up from his nap with a molasseses looking fluid draining from his left ear. Ear drops were called in. When I went to pick them up my sister said it was coming out of the right ear too! Can H ever be free of these STUPID ear infections?

So, here we are on another 5 day adventure with fighting with H to get these ear drops into his ears. I feel so sorry for him. There is nothing I can do for him. I just hope he grows out of this soon.

Lunch is here, I'll write more later.

What Does My Handwriting Say About Me?

What Your Handwriting Says About You
You are a fairly energetic person. You know how do pace yourself, and you deal well with stress.

You range from very outgoing to very shy. You are a shapeshifter who is very versatile. You adapt well, and you look at things from many angles.

You are balanced and grounded. You know how to get along well with others.

You need a bit of space in your life, but you're not a recluse. You expect people to give you a small amount of privacy, and you respect their privacy as well.

You are somewhat traditional, but you are also open to change. You listen to your head and your heart.

You are a decent communicator. You eventually get your point across, but sometimes you leave things a bit ambiguous.


http://www.blogthings.com/whatdoesyourhandwritingsayaboutyouquiz/