Monday, September 7, 2009

Summer Update

Hello! Harrison has had a really great summer. He walked on the beach for the first time this summer. It was so fun to watch him hesitate. He did not like it when the water came up and the sand started to slip away from under his feet. By the 10th day at the beach he was having a blast and trying to jump the tiny waves. He loved throwing his boat into the ocean and watching it wash up to shore.

He also rode a train and went to the zoo for the first time. The Fort Worth Zoo has a train. He really loved riding the train. He wasn't too into the zoo animals. But the train, we could have done that all day. He is obsessed with Thomas the Tank engine and all other trains.

He started school on August 24th. Will is in 3rd grade and Harrison goes to preschool at a different school. He rides a big yellow bus and loves it. I was afraid he would cry, but he didn't. He goes to school everyday.

His health has been great. We saw Cardiology this summer and we don't have to go back until next summer. That means once a year, instead of twice a year. His biggest challenge right now is his speech. We are going to a hospital in Dallas to evaluate Harrison for an augmentative speech device. We have the visit on September 21st. He does speak a little. We know what he is saying about 60 % of the time and outsiders may know about 10% of the time. The therapist say that his severe expressive speech is due to his syndrome and his cp. To date, these are his words and definitions: mama, papa, wawa (Will, waffle, and water), nana (grandmother and banana), ooo (blue), mare (more), me (him), lela (Bella our dog, or any dog), mimi (Emma), bobo (boat), bubboos (bubbles), ellow (yellow), urple (purple), urtle (turtle), Pam (Aunt Pam), nana (no), actually he says nana, wawa (which means no, William), he can say eye and toe. So, he has a good vocabulary started.

Will is having oral surgery on the 24th. He is missing a permanent tooth, so he is having his baby tooth pulled. He is also having his tongue clipped. After having speech therapy since he was 3 the dentist discovered that he is tongue tied. Amazing, I always wonder about that. He is pretty excited. He has never been able to lick an ice cream cone and is looking forward to it.

Thanks for checking in on us.

2 comments:

The Portas said...

Great to see an update! I'm glad you guys had a good summer. I'm so happy to hear that Harrison loved the beach.

A year between cardiology visits, wow!! I can't wait till we're at this point.

It sounds like you are staying on top of everything, so that's great. I hope school is going well for both boys!! xo

Unknown said...

I'm so excited your getting something to help Harrison communicate! Can't wait to hear how it goes.

Sounds like you have a great dentist. I'll keep Will in my prayers.