I have been really bad about updating lately. Everything is going great with Harrison. We have resumed therapies since the surgery. He seems to be recovering nicely with the surgery. We had a little scare with the drainage tube site healing, but luckily it is finally healing. It looks like a dried up umbilical site that just keeps hanging on.
It has been very busy around here with my new preschool position and with William starting school on Monday. We are all anxious to get into our routines and I am sure we will anxious for summer by February. I must admit I caved in and have become addicted to the latest craze...FACEBOOK. Yes, I have joined Facebook.com and I am enjoying seeing people I have not seen since highschool. I have my 20th reunion next summer and now I know I need to work on myself.
Harrison is being referred to a Pediatric Developmental Specialist for his delays. We are making no progress in Expressive Language and his repetitive behaviors are spreading into other areas, so his Behavioral Therapist feels that now is a good time to seek another opinion. I pray that these red flags are all they are RED FLAGS. I could not handle someone telling me anymore bad news. I know that early intervention is the best thing...I'm just not ready for what the future holds. Many parents think about their child's life all the time and that works for them. For me, I try not to think about it too much. I see the scars every day. I hear no words out of his mouth every day. I see him opening and shutting doors every day all day. I see him throwing toys every day. He throws them inside and he will open the back door and throw them outside. This is his day opening and closing and throwing. I adore him and love him and hurt for what he has endured in his short life. And I am only human. This stage of his development is becoming long and remains a high stresser in my life. He does a lot of cute things and those are about 20% of his day. Harrison will be 3 in November and in many ways he is like a 12 month old. It will be one year in November since he took his first step though. I can't believe it has been a year alreay. When I get frustrated with Harrison's behavior I listen to a song I found on the internet. Heaven in your eyes...www.22q.org/music2.html
Go there and listen to it. There are a few others that are just as beautiful. Enjoy. I know...post pictures.
3 comments:
Thanks for the pics!!! Such a cutie pie. :)
I'm glad you're on facebook! Another way to stay in touch with you!
I'm so sorry that you're feeling down about Harrison's progress. I sympathize with that. Elijah is WAY behind in so many areas. I will admit that I HATE hearing other parents talk about what their 18-month-olds are saying and how they are running around, etc.. All of that is months and months off for us yet. It's hard. But I always try to remind myself of all that he has been through. More than you and I will ever know! They need a little bit extra time. That's just how it is. And they're so darn cute! :)
I hope you find some peace. Please call or email if you ever want to vent. I'm always willing to listen and we can swap sob stories. :) My number is 952-484-4921.
Hope you're all having a great weekend! Smooches to those cutie boys of yours. xoxoxoxo
I am so glad to see you updated the blog. I've been coming and checking often.
I want you to know I feel exactly the same way as you. Arianna will be two in November and I have a really hard time thinking to future. I can't even think about what things will be like when she's 3 because I'm scared of what it will be like. I was just talking to my sister tonight and some how we started talking about the future and when Arianna goes to kindergarden. First of all we're not even sure she'll be able to attend kindergarden due to her lung disease. Then she makes a comment about me having another child. Believe me I want another child but I feel like it wouldn't be fair to either child if we did. Arianna requires so much attention and as the years go on we don't know what we'll be dealing with. I'm really worried about the possibility of behavior issues and of course her speech. UGH...as you can see I have alot on my mind too.
You know I am always here if you need someone to talk to.
By the way I love the picture of Harrison with the towel on his head. He is so darn cute!!
Take care,
Vanessa
So glad you updated Tiffany. I check often too, wondering how you all are doing.
I was saddened by your post...1. because you (a fellow, VCFS mommy) are sad and 2. because well there's always that black cloud that we try to avoid or turn towards the sunny side, but the fact is its there. The best we can do is look at the sunny side AND as hard as it is educate ourselves.
I pray like you said that these are ONLY red flags and nothing else.
I try really hard not to compare Angelina to others, it is hard when you have constant reminders. But she is one of our blessings, and that keeps me going. Her smile, and seeing her bonding with her brother and sister always brighten my day. I listened to your song...had to go get kleenex! Its a beautiful song, thank you for sharing.
Take care, hope that the cute happy moments become greater every day!
Heartfelt hugs,
Ana
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