Harrison had OT yesterday. She is pleased with his progress. Rachel wants us to continue stretching his right wrist and forearm. His shoulder is feeling looser, but his right side is still a bit tight. That therapy ended at 11:00 and his next one was at noon.
The noon therapy was supposed to be a lunch therapy with his speech therapist and his dietitian. Well, he was so tired he did not eat much at all. They watched what he did eat and made some recommendations. We need to get him to bite on his sides, especially his right side. He was weighed and measured. He gained 4 ounces this month, so he weighs a whopping 20lbs. 9oz. and his length was the same as last month; 29 5/8 inches. So, basically he is still on his own growth line, which is below 0% for everything. In fact, he dropped a tiny bit off of his line but they are not worried.
He will have a speech evaluation next month and a 6 month reevaluation too. He has come a long way since we moved back home to Texas. He ended his therapy in Minnesota at 8 months old and all he could do was roll from back to tummy and vomiting after almost every meal . He started therapy in Texas in October, 11 months old, and all he could do was roll from back to tummy and tummy to back and drink 16 ounces a day. Now, at 20 months old he can crawl, pull to a stand, cruise around furniture, walk with a walker toy, wave bye bye, say mamama (for everything), and bark like a dog. As for nutrition, he finally could eat baby food in November and now he can eat stage 3 baby food without vomiting from choking. The nutritionist says he has come a long way, especially since he doesn't choke and throw up now. It seems like years ago that he was constantly throwing up during or after his meals, and really it has only been a little over 6 months. Thank God! Most of this, with the exception of crawling, has happened this week. Boy, he has been a busy little bee this summer!
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5 comments:
Progress is sooo nice, isn't it? Congrats on how far you have come! Keep up the good work.
I feel like I'm Elijah's physical therapist right now....constantly working with him on rolling, neck muscle strength, etc.. It is HARD work! But it's so rewarding when all the work pays off.
I forgot to mention...thanks for all the info about the ENT and gaining neck strength, etc... We have started to use a boppy, but he still shows NO signs of lifting that big head up! So frustrating. Oh well, we'll keep at it.
Turns out, we are scheduled to see Dr. Sidman in a few weeks. Small world! I'm anxious to see what's up with Elijah's wheezing. Hopefully nothing too scary.
That's great ~
yippie!!
So sorry I didn't comment sooner! The numbers that we follow closely with Drew's immunologist are the CD3s and CD4s (they are different T-cell subsets). They also check from time to time to see if his body is producing antibodies to vaccines that he's received. We haven't had a problem with his IgGs, but some kids do so you might want to ask about those too. I hope that helps, and let me know if you have other questions!
Came by for a visit.
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